Ways to cope when someone important to you has a serious illness
Managing your thoughts and feelings, adjusting to changes in your life, and grieving before someone has died.
Being told that someone has a serious illness and is going to die can be incredibly confusing and difficult to try to make sense of. Some people might have been told at diagnosis that their illness cannot be cured, and for others, this news may have come after living with the illness and having had treatment. Knowing that there is no further medical treatment to help your person recover may be one of the most challenging things to deal with. It can be complicated to manage your thoughts and feelings, adjust to changes in your life, and continue with daily life, knowing things will be different in the future.
Anticipatory grief describes the grief feelings that you have before a person dies; it's like experiencing grief before a bereavement happens. Like grief, there is no right or wrong way to begin to grieve while the person is alive. Emotions might feel really big and all-consuming at times, and at other times, you might be focusing on things that distract you to give you a break.
There are many feelings that you may experience, and these may change rapidly or feel like they hang around for a while. It is impossible to write about every emotion you might feel here - here are a few that you may feel when someone has an incurable illness.
Numb
This news might have come as a shock, and it might also feel so big that you do not know what to feel or are unable to work out what you feel. This is understandable.
Anger
Just like grief, anger can be a big emotion when someone is terminally ill. You may feel angry that the illness is happening to them, you might blame them for what has happened, or you might be angry that the medical team cannot help them get better. You may have lots of questions that cannot be answered, and it can feel unfair that you are having to deal with this. Anger is normal.
Worry
Knowing that the future will look different without the person being part of it can be really worrying. Uncertainty about what will happen, when it will happen, and how you will cope is valid. It might feel difficult to share your worries and talk about them, especially if you are worried about others around you and how they are coping.
Guilt
It is common to have feelings of guilt, and these often focus on things that have been done or said or not done or said. You may feel guilty if you find it hard to spend time being with the person because it is too hurtful, or your relationship with them might be complicated. Guilt is a feeling that can show up before the person dies.
Scared
Fear of the future and living with uncertainty might mean that you feel scared. You might be worried about what will happen as the person becomes more unwell and the changes that you might see in them. Not knowing when they might die can feel very overwhelming and frightening.
Lonely
It may feel like nobody understands what this is like for you or you may also want to avoid others and choose to be alone. Friends might find it difficult to know what to say to you or avoid talking about it in case they say the wrong thing. This can lead to feelings of loneliness.
Having ways to help cope can be helpful for letting your feelings out, being able to distract yourself and continuing to enjoy things that are important to you. What helps may take time to figure out and might look slightly different for individuals, but you may find these suggestions useful:
Day-to-day life can really feel like it has changed when someone has a serious illness. It might be that you are trying to balance changes along with continuing your normal life. You might also be focusing on the future, not knowing what this might look like and when it might be time to say goodbye to your important person. This might feel overwhelming, worrying and out of your control.
At other times, life might feel like it is continuing as normal with things like going to school, college, university or work, seeing friends, having fun and doing things you enjoy. It is important that you can have moments where you feel calmer and can do the normal things that give you a break.
The illness and any medication might make your person look different, and they may not be able to do the things they could before. You might decide to take on responsibilities to help, or you may prefer to focus on your normal routine. Home might feel different with healthcare and medical professionals visiting who are involved in caring for the person at home, and there might be equipment too, like a special bed. Time might be needed in the hospital, or they might go to a hospice to be taken care of. All of this can be confusing, and it is normal to have lots of questions about what is happening, or you may not want to ask any questions.
The roller coaster of anticipatory grief can feel up and down, like it twists and turns. Sometimes it might feel lonely and isolating, and other times you might feel a sense of closeness to people around you. You may alternate between feeling normal and things feeling unbelievably different. Be kind to yourself as you find your way through, and remember if you need someone to talk to, Winston’s Wish is here.
If you need to talk, we’re here to listen. Our bereavement specialists are available to speak with right away. No appointments or waiting lists, just real-life support. You can chat with us anonymously if you wish and share whatever you are feeling. Nothing about your grief is off limits. We promise to listen, not judge and can offer advice and guidance if needed. You can speak to us as little or as often as you want. Start a conversation now. You can speak with us between 8am and 8pm, Monday to Friday (except bank holidays). You must be 13 or older to receive support via WhatsApp.
Click the blue 'chat with us' button at the bottom right of your screen between 8am-8pm, Monday to Friday.
Call us for free on 08088 020 021 between 8am-8pm, Monday to Friday.
Text or WhatsApp us on 07418 341 800 between 8am-8pm, Monday to Friday.
For urgent support, please call 999.
If you need to speak to us in a language other than English, we can use interpreters over the phone, and we can use the Relay UK app if you have hearing or speech difficulties.
Talk Grief is powered by Winston’s Wish, a childhood bereavement charity that supports grieving children and young people up to 25. If you want to talk to someone about your grief, call us on 08088 020 021, email ask@winstonswish.org or use our online chat, or text or WhatsApp us on 07418 341 800 (open 8am-8pm, Monday to Friday). For urgent support in a crisis, please call 999.


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